The Status Woe

Rising above mediocrity one mishap at a time

Angsty is not professional or helpful. I’m looking at you Recipient Rights Office in Lansing, MI *waving*

on August 1, 2013

If you read my last blog post about my friend Lisa, you know that we asked anyone who read her story to submit a recipient rights violation and send it (old fashioned snail mail)  to the recipient’s rights office at the main building in Lansing.

Many people sent in letters.  And I’m happy to tell you that Preston is in treatment.

PRESTON IS IN TREATMENT!!!!

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I’m not exactly sure how Preston got into treatment.  Letters, prayers, and I suspect there were many people working behind the scenes to move mountains of paperwork for this child.  They did it.  A family who was in severe crisis is now on their way to an improved life and getting Preston the help he deserves.  I don’t know who you are but THANK YOU!  You have just given this family a miracle.

Similarly, there were people working behind the scenes to get Issy help.  Moving mountains of paperwork, phone calls, jumping through hoops.  We are so very thankful.

It seems to me that currently, to get a child who has extreme behaviors help, you almost need special treatment.  You have to get the attention of important people.  I hope that changes.  I hope there becomes a streamlined process for families who have suffered at this level (yes, living for years in a life threatening situation is enough suffering) so that the attitude is helpful and sincere.  Please say words like this to those families:

How can I help you Mrs. Stapleton?

I don’t know how you have done this for so long!

Here is our plan for your child.  What do you think?

Here is a program for you and the siblings, run by excellent professionals who have experience with what you have gone through.

Please call us with any concerns.  We want to help you.  We want to improve our services for other families.  So really, any concerns you have, just call, email or text me. 

Ok….I know that’s a dream but I believe it can happen.  We live in a great state!  The mitten state!  We are surrounded by HUGE freshwater lakes.  Did God do that with the other states?  Noooooooooooo!  Clearly we are favored here!

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Which brings me to a recent EPIC disappointment.

Just the other day I got this comment on my blog about Lisa  from Beverly Sobolewski 

She works at the recipient rights office in Lansing.  I’m hoping that she isn’t the main director.  If she is, my disappointment just became exponentially worse because this attitude will have a trickle down effect with her underlings (I’ve seen it before).

This is the comment:  photo (3)

It just seems angstyya know?!

My reaction:

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Well, I can’t speak for the entire state government, but this is the attitude that exemplifies what is wrong with our state system in dealing with extremely disabled children.   And not unlike what I’ve gotten from nearly everyone who is in a position to help us and chose to say words that ultimately do nothing to help more the situation forward.

Here is the comment I wish she had written.

Dear Kelli,  Thank you so much for bringing this case to our attention.  It is heartwarming to see so many good people support Lisa and Preston.  I wish more families had this wonderful of a support system!  We have received 50 letters from MI, 20 from other states and 2 from
Canada!

Now that we know about this situation we will open an investigation.  It will involve talking to her, her local CMH, and others so we have a complete understanding of her situation.  We understand that this is an emergent situation so we are pulling all of our resources to help this family.

Our office is here to help families like Lisa.  Please don’t hesitate to file a recipients rights complaint in the future anytime you feel a consumer is being mistreated.  It is our job to help.

Best wishes to Lisa, Preston, you and Issy!

Sincerely,

Beverly

I know, I know.  This isn’t realistic.  Not yet.  But someday the attitude in our great state will be one that is supportive and helpful.

YOU MAY SAY I’M A DREAMER

but I’m not the only one

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Thank you for reading,

Kelli

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