The Status Woe

Rising above mediocrity one mishap at a time

Finding Help is Different than Getting Help.

on December 17, 2012

So my daughter has agression issues.  You can read this post here for some insight.

Or listen to this show on the Coffee Klatch here.

 

I’m so grateful to have friends and family who are always on the lookout for autism related news for me.  Recently, a friend sent me an article about a place that opened in Kalamazoo,MI (Yes there really is a Kalamazoo!).  

So I called The Great Lakes Center for Autism Treatment and Research

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This facility was built SPECIFICALLY for autistic children with “problem” behaviors like mine.  I CAN NOT EVEN express the relief I felt in speaking with someone who understood what was happening to me, our family, and specifically our daughter.

Did I mention that GLCATR is ONLY 3 hours from home?!?!  Honestly, it’s times like this that I believe God makes miracles.

I cautiously asked, “How long is the waiting list to get in?”  The answer, “There is only one child here now.  We have open beds, and not only that, but your child will never receive better care from a full staff!

I drove down to Kalamazoo THE NEXT DAY!

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The facility was amazing.  Brand new, cutting edge, full of bright and shining staff.  I impressed and humbled.  

Help at last!

They wanted to meet Issy so back to Kalamazoo we went! 

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My husband got to see the facility and we had more time with one of the directors.  They separated us from Issy so they could get to know her. 

Predictably, she showed some of her agressive behavior.

So we left there knowing that GLCATR can and would help her! 

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That feeling.  You know, when you’ve accomplished something so hard.  Crossing a finish line, getting a diploma, summiting a mountain.  That feeling.

Too good to be true right?

Yes

I’m learning that GLCATR is NOT covered by insurance.

Nor is my CMH required to pay for treatment.

 

It’s been 2 months since our visit to Kalamazoo.  Her agression continues to escalate.  10 days ago she beat me unconscious. My younger daughter used her phone to call for help.  I was hospitalized as a level 2 trauma.

We notified CMH of this new incident.  And still, they won’t pay for treatment.

We have met/consulted with

1.) The state psychologist Price Pullins

2.) Child Psychiatrist Shelia Marcus  and Behavior specialist Judith A. Coucouvanis

3.) High level Department of Children with Developmental Disabilities representative Lori Irish

 

They each know our story.  The horrific nature of Issy’s agression.  Yet, there is no treatment coming.

 

An interesting fact.  If Issy were on medicaid, she would have treatment. 

So if I divorce Matt, she may get treatment.

If Matt lost his job, she would get treatment.

If Matt died, she would get treatment.

If I die, nothing changes, she still won’t qualify for treatment.

If we relinquish parental rights, she would get treatment.

 

I honestly can’t even wrap my head around the fact that in the 21st century this little girl can’t get help.

 

We can’t give up on her.  We just can’t.  She is our little girl…

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